Noa Williams had been suffering fits since he turned one and by the time he was two they had increased in severity and frequency
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Noa Williams suffered fits since he turned one but they increased in frequency and severity
A father has revealed how he woke up to find his son was dead after being told the boy would grow out of the regular seizures he was suffering.
Noa Williams had been suffering fits since he turned one and by the time he was two they had increased in severity and frequency.
However, medics had assured mum and dad, Lowri and Aled, he would grow out of them by the time he was six.
Now, nearly two years since they lost Noa, Aled and Lowri have established a charity in his memory.
Aled, 29, from Ynysybwl in Rhondda Cynon Taf, said a pattern emerged when Noa was fitting.
Noa Williams with his parents Aled and Lowri (Photo: Wales Online WS)
“Lowri and I became very worried as Noa’s seizures began to increase and also became more severe,” he said.
“But we were told he would grow out of the seizures by the time he turned six.”
Noa had a serious seizure where he nearly lost his life – he was unable to breathe, and, without oxygen support, he would have died.
At this point the couple were “massively shaken up” and “frightened”.
Noah with his family after his birth (Photo: Wales Online WS)
They began to feel alone in the battle to discover what was wrong with Noa.
It was September 23, 2015, that the couple’s worst fears became a reality.
“On this day, Lowri felt uneasy about Noa and said she felt something was not quite right with him.
“He was very warm and slightly under the weather.
“The next day, as Noa’s monitor turned on, I heard the sound of him playing.
“But then I woke up again at around 8am to silence, which was unusual.
Noa Williams pictured with him mum, Lowri (Photo: Wales Online WS)
“I walked into Noa’s room and as my eyes scanned down his body I noticed purple spots on the back of his legs.
“To my horror I screamed to my wife that Noa was dead.”
Aled rushed to his bedroom and placed him on the floor to begin CPR.
He also asked his wife to call 999.
The ambulance service arrived 15 minutes later and took over from Aled.
But Noa was announced dead an hour later – it was confirmed he had died not long after Aled heard him on the monitor at 5.30am.
The cause of death was defined as sudden infant death of a two-year-old.
“Lowri and I were both frozen, confused and angry,” said Aled.
“Our home had now become a prison cell where we had no escape.
“We were lucky that friends and family took us in to live with them for the first week and they also helped to settle us back into the house at a later date.
The cause of death was defined as sudden infant death of a two-year-old (Photo: Wales Online WS)
“We decided we would battle this and keep going for Noa, and with the help of friends, family and the whole of Ynysybwl, especially Ynysybwl RFC, we were able to begin to rebuild our lives.”
The couple decided to set up a charity in memory of Noa.
But they also wanted to remember the brother of one of Aled’s best friends who passed away a month before Noa after experiencing an unexpected brain haemorrhage.
James Lloyd, also from Ynysybwl, was a fit and healthy 22-year-old, who had a huge passion for music.
His sudden death left the community shocked, Wales Online reports.
“My friend Daniel and I supported each other through our bereavement, and spoke about what we would like from the charity,” said Aled.
“Our main aim was to give back to the community that was supporting us, and still is to this day.
“Ynysybwl is small in size, but it’s also a very passionate sporting village, so we decided to give back to the sporting community in the memory of Noa and James.”
The Noa J Charitable Trust relies on donations to survive, and the families are planning many events to raise funds and organise activities for the public to attend.
It will work to sponsor and help support sporting clubs and facilities across Wales.
Aled said: “As a family, we are now in a much better place with baby number two on the way.
“Lowri and I are both delighted and excited and are hoping that we get to see our little princess grow up into a beautiful woman and be parents to another wonderful child.”